A significant component of any comprehensive and holistic health care assessment includes a Quality of Life evaluation of patients, especially among our elderly: how they attempt to cope and adapt with the tasks of their age, regardless of illness, inhibited activities of daily living (ADL's), their ongoing physical and emotional losses, grief experiences and lamentations, and finally,their ultimate transformation as elders.
The Family Life Cycle, consisting of anticipated stages of family life, tasks required by the family and its members to complete, and skills needed to accomplish these goals is also available to facilitate the evaluation process.2
In
other words, families move through predictable stages by utilizing specific
skills to accomplish appropriate tasks. By not having the necessary coping and
adapting skills, families may be forced to move ahead regardless of whether
they completed their tasks or not. Many of these families become problematic by
not being able to really do well in any subsequent stage(s), and thereby become
deficient in meeting individual family member needs, goals, and aspirations. Within
some families, they become “stuck” at a particular stage because of their
inability to move ahead and individuals in the family are hampered in their
efforts. In other words, each person’s needs within the family may be enhanced
or inhibited by their family’s successes or limitations in meeting their
family’s goals and objectives. In the
psychological sciences, we refer to these phenomena as independent and
interdependent variables.
We
had defined five initial stages of the family. Subsequent evaluation revealed
that there may be more than five, but unlikely be less than five stages.
Variations that alter stages and their tasks can include: severe family problems,
permanent marital separation, divorce, widowhood, remarriage/blended families, and
single parent-hood, late in life family development, alternative lifestyles, traumatic
social/cultural events, war, depression, and natural disasters.
The
stage that includes the sandwich
generation is Stage 3, or called “The Transitional Years (Children becoming
non-dependent to leaving home).
Tasks: Launching children
Reevaluation of roles:
evolution from parents back to partners as
their primary role
Career changes
Bodily changes
Changes in relationship to their aging parents: from children to degrees of care giving, evaluating parents for quality of life, safety, and future security
Changes in relationship to their aging parents: from children to degrees of care giving, evaluating parents for quality of life, safety, and future security
SANDWICH GENERATION
The
sandwich generation is an important facet of this stage of the family; for the children are hopefully becoming (in many ways) independent while the elder-parents are becoming more
dependent. This is potentially a time of very emotional
and anxiety producing experiences. (Difficulties here spill over into other
important areas and have a negative impact on achieving family tasks and on
overall family stability). Not only for the elders themselves, but for their
adult-children, who describe feelings of being "caught" by the
differing and opposite needs of their parent(s) and their own children. They can
perceive themselves as being emotionally insecure and sometimes even greatly inadequate
in caring for either their parent(s) or their children: not only because of the
difference in needs, but in their real or imagined lack of skills and experience-based
wisdom to be effective. Many tell me that neither their children nor their parents have much faith in their abilities or even in them.
The last stage in the family life cycle we have named "Later Years: Retirement to Death
Tasks: Acceptance of change
Bodily changes
Coping with probable loss of partner
Deal with realities of living arrangements
Importance of intergenerational and social contacts
Maintaining Integrity of Self
Maintaining a life of meaning and purpose
(It is understandable that conflicts and turmoil can envelop a family when confronted with such different and varied stages, especially when they are happening simultaneously.. Many families simply lack the skills and knowledge to enhance these stages. However, many families get through them with a minimum of conflict and with much success and therefore deeply enjoy the fruits of these stages.)
The last stage in the family life cycle we have named "Later Years: Retirement to Death
Tasks: Acceptance of change
Bodily changes
Coping with probable loss of partner
Deal with realities of living arrangements
Importance of intergenerational and social contacts
Maintaining Integrity of Self
Maintaining a life of meaning and purpose
(It is understandable that conflicts and turmoil can envelop a family when confronted with such different and varied stages, especially when they are happening simultaneously.. Many families simply lack the skills and knowledge to enhance these stages. However, many families get through them with a minimum of conflict and with much success and therefore deeply enjoy the fruits of these stages.)
THE BIG TALK
So
many adult-children have to focus on uncomfortable discussions, or “The Big
Talk”, of serious challenges, such as a probable need for living arrangement changes for their parent(s).
Let us focus on this particular challenge because it exemplifies many such issues confronting a family. This need for living arrangement changes generally follows a number of potential-loss experiences by the parent(s). Loss of a partner, significant changes in health status, degrees of declining mobility, decline in evaluating critical issues, loss of income, changes in social status, financial setbacks, and loss of important family and friends due to death or moving away, are some of their losses of great significance. They can oftentimes respond with deep grieving to these losses, especially if there is no respite between them and little chance to try to re-balance their lives and cope with both their losses and their grieving.
Let us focus on this particular challenge because it exemplifies many such issues confronting a family. This need for living arrangement changes generally follows a number of potential-loss experiences by the parent(s). Loss of a partner, significant changes in health status, degrees of declining mobility, decline in evaluating critical issues, loss of income, changes in social status, financial setbacks, and loss of important family and friends due to death or moving away, are some of their losses of great significance. They can oftentimes respond with deep grieving to these losses, especially if there is no respite between them and little chance to try to re-balance their lives and cope with both their losses and their grieving.
This
may be the first time adult-children witness their parent(s) becoming afraid,
anxious, and emotionally unsure of their own future. Elder-parents are facing a
new world for themselves, one of different rules and expectations. It is also a
world in which their dependence on their adult-children intensifies, and the
adult-children may also share the same insecurity and anxiety. We know they may
share feelings and emotions of anger, great sadness, and fear. They may soon
come to realize that their lives will never be quite the same again, and
suddenly, the future for all in the family is the “potential unknown”3.
The
process of selling a family home, with its myriad of memories and sense of
earlier family stability, and then moving to an assisted living facility or adult
community is not an existential experience in itself. It oftentimes follows a
period of major losses by parent(s) and emotional grieving that can tax both
the elder parent(s) coping and adapting skills and the resiliency of their
adult-children.
While Quality of Life is of great importance in all stages of
the Family Life Cycle, it has special significance (and requires special
attention) in the stage that also illuminates the particulars of the sandwich generation. We know that it
affects adult-children, their families, and their elder-parent(s). We also
believe that inter-generational strength can come from its greatest struggles:
if the family gives itself what it needs to safely navigate its difficulties,
and uses the wisdom gained from its experiences.
Ernest Hemingway once said “The
world breaks everyone and afterward many are strong in the broken places.” 4
While I believe some of us, but not all, are so negatively affected by our
experiences, I also believe that the most difficult experiences can make us
stronger than we were before. Sometimes, but not always, we need assistance
from guides and mentors. Both elder-parents and their adult-children can
benefit from consultation with an experienced Elder Family Therapist who has
already traveled these same paths and can cautiously guide a family through
these difficult times.
*****
Losses in elder
continuity (the home and its sense of belonging), and losses in elder
connections (important persons in their lives) impacts negatively on all other
parameters of Quality of Life among our elders.5 It is not surprising
that family conversations about the possibility of changing residences invoke
such high degrees of emotionality for all of the family...
*****
1.Wolkenstein, Alan S., Lawrence, Steven L., and Butler, Dennis J.
Teaching Family: The Family Medicine Chart Review. Family Systems Medicine.
3(6), 1985, 171-178.
2. Wolkenstein, A. and Butler, D. Quality of Life Among the Elderly: Self Perspectives of Some Healthy Elderly. Gerontology and Geriatrics Education. 1992, 12, 59-68.
3. Small, Jeffrey. The Breath of God. West Hills Press. New York. 2011.
2. Wolkenstein, A. and Butler, D. Quality of Life Among the Elderly: Self Perspectives of Some Healthy Elderly. Gerontology and Geriatrics Education. 1992, 12, 59-68.
3. Small, Jeffrey. The Breath of God. West Hills Press. New York. 2011.
4. 4. Hemingway, Ernest. A Farewell to Arms. Scribner’s.New York, 1929.
5. 5. Wolkenstein, M. Evan. A Quality of Life Wheel: A Tool for
Reading, Understanding, and Living. Ravsak. Summer,2012.
See
also:
Wolkenstein,
A., Wolkenstein, ME., and Simona, K. The Card: An Educators Encounter with
Cancer. Family Medicine. 2004. 36(2), 137-140.
Wolkenstein,
Alan S. and Wolkenstein, M. Evan. Signposts of the Cancer Journey. Coping
with Cancer Magazine. 2009. January-February.
Wolkenstein,
Alan S. An Odyssey Within Prostate Cancer; For Men and Their Partners.
Ortho-Centacour Biotech-Caregiver Section. www. myprostatecancerroadmap.com
Professor
Alan S. Wolkenstein, MSW, is trained in
both Sociology and Psychiatric Social Work. He is retired Clinical Professor of
Family Medicine at the University of Wisconsin School of Medicine and Public
Health. He last served as Professor of the Behavior Sciences Consultation Service for Concordia University of Wisconsin, where his students and faculty knew him as Prof.
Alan
is a veteran of 35 years of teaching, education, and research in graduate
medical education and is nationally recognized as an expert in the education of
physicians and health care professionals in human behavior and family dynamics.
He also had a private practice in which he worked with individuals and families
struggling with health issues, difficult relationships, and elders attempting
to find balance and focus in a world that is often perceived as harsh,
unpredictable, and unforgiving.
Having
lived with and through cancer and being a senior himself, gives Prof a
personal perspective to work with individual and families negotiating their way
through life's multiple experiences and challenges.
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